Question
I am a home nurse care giver new to the world of high cord injuries. I've been doing all I can to learn more on what I need to take care of my patient.

I've learned a great deal on autonomic dysreflexia (the first thing I looked up) so I think that I'm ok on there.

What would you have your loved one's (or self) caregiver to know the most about how to take care of someone with this level injury?

Also, I know that suctioning is a point of absolute terror. Having had the experience of being on a vent one time myself I get it, but that doesn't seem to translate at all. What would those of you that know how suckful (no pun intended?) like to get across to me that might make it easier in the future.

Answer
hi leanne

Funny, i don't recall the suction as being scary. (assuming you mean through the trach?) What I recall being scary was not being able to breathe.. perhaps this could be a helpful thing to remind them?

as for caring for people with high injuries- I guess if they are accustomed to their abilities, the most important thing is to listen to them. (as i'm sure you know) they aren't any less of an individual or a person because they can't move. there's a few (hundred) people whose heads i'd like to pound that into...

Maintain a sense of humor. This saves my life and my sanity on a regular basis. Things will happen that are horrifying and sad and gross- that's just par for the course

just be open to suggestions, ask questions. The more straight ahead you deal with things the less stigma gets attached to them (my opinion)

it's a learning experience, they say =)
good luck
leslie