Question
I have a family friend with Cornelia Delang Syndrome.  What can you tell me about this disease and how might I access information on the net concerning this disease!


Answer
Hello Geneva,

A good resource is the CdLS- USA Foundation. http://www.cdlsusa.org/

Also, feel free to contact Kris Madore at Crotched Mountain Rehabilitation Center. She currently serves two children who have the diagnosis of Cornelia de Lange Syndrome. You can email her at [email protected] (tell her I sent you).

Hope that helps!

Jon Eriquezzo
All-Experts.com