Question
about three years ago i started to get telangiectasia up my neck and all over my body previous to that i had raynards for about ten years ihave a couple on my fingers and only a couple on my lip i also have been diagnosed with fybromyalgia i am a 52 year old woman and when i had a blood test i showed a mild ana what ever that is i was sent to rhumatology who told me i may have crest i feel a bit lost as they just dissmissed me with that and dont want to see me any more i feel in limbo do i have it or dont i what should i do not worry and get on with my life or do i ask to see some one else

Answer
If that practice doesn't want to see you, find another rheumatologist or an internist who will give you ongoing care.  There are treatments for fibromyalgia and associated pain, and you should take good care to keep your fingers and toes warm.  Typically, a calcium channel blocker is prescribed for the Raynaud's but it doesn't do much for many people.  Fortunately, new treatments are under development.  A rheumatologist would probably be the first to know of them.  You don't mention reflux or heartburn, but you should be mindful of it and report it to your doc. If it becomes untreatable with over-the-counter meds, it's essential that you work with her/him to get it under control.

"CREST" is a reference to 5 symptoms that can occur in any scleroderma patient - calcinosis (pockets of calcium in the skin, usually around a joint,) Raynaud's, Esophagitis (or reflux,) Sclerodactyly (tight skin on fingers,) and telangiectasias.  Not everyone gets all 5, so those that do are said to have CREST syndrome.  Unfortunately, some health care workers still refer to limited scleroderma as "CREST Syndrome."  

Limited scleroderma is a slower-moving systemic scleroderma than diffuse scleroderma.  The time between the first Raynaud's attack and skin tightening in someone with limited disease can be months or years.  Also, tightening is usually confined to the hands and face.  Some people consider limited a "safer" form of systemic scleroderma since diffuse usually comes on fast and is more likely to damage internal organs early.  However, limited scleroderma can get complicated to manage later, and limited patients should have the same baseline and yearly tests that all other systemic patients get.

Find someone experienced with systemic scleroderma, or see a scleroderma specialist who will work with your local rheumatologist to coordinate your care.  The Scleroderma Foundation has research and treatment centers listed on their website - http://www.scleroderma.org