Question
My son was born with several orthopedic problems (torticollis, plagiocephaly, severe windswept hips & feet, flat feet, "dropped" big toes, and minor scoliosis).  He's 14 months old now.  When I took him to his orthopedist yesterday for a checkup (every 4-6 months), she confirmed what we'd suspected all along... his right leg is longer than his left.  She told us it could be one of two things... either one is simply a little longer than the other, but they'll always grow at the same rate (corrected by shoes), or the right leg is growing faster than the left.  

Here's my question... she said that if the right is growing faster than the left, it could mean he has "fill in the blank???" in which one entire side of the body grows faster than the other.  She plans to check this periodically for several years by comparing his hands (clapping position), feet, and tongue shape.  She said it can only be diagnosed later in childhood, but that she's concerned enough to start keeping tabs on his growth now.

What's the "hyper-something" condition called, and if he has it, what is the treatment?  Is it genetic?  Just a fluke?  Surgery?  Transplants?  I have no idea, and being a first time mom, I'm probably a bit "too" concerned.  I just want some answers and peace of mind, but I don't know the name of the condition, so I don't even know where to start.

Answer
Dear Chrystal

First of all, I don't think you are over concerned.  I think you are handling this well.  I am not a doctor, and I don't have much knowledge of what is going on with your son, but the first thing you need to find out is if the orthopedist is versed in pediatric orthopedics.  If she is not, you must find a pediatric orthopedist.

In addition, I would ask her if she has ever treated a child with the type of problems your son has.  If not, you need to get him to a place like the Mayo Clinic or you need her to refer you to an orthopedist who has treated children with these types of problems.  Regardless, get a second opinion.

You might want to start with by getting in touch with the largest TEACHING hospital in your area.  Call them and ask to get an appointment with the chief of orthopedics of the hospital.  Then you can get referrals for other specialists.

It might be that your son's orthopedist has knowledge in this area, but you have to find that out.  Educate yourself and learn to be your son's advocate.  He has a long road ahead of him and you have to make sure that he gets all the services that he deserves.

I wish you the best of luck and you will be in my thoughts.

Sharon Davis